Skip to main content
  1. Tags/

Chronic-Illness

2026


The Cost of Appearing Functional

·2665 words·13 mins
Multiple disabilities don’t add up to twice the difficulty. They compound. And the hidden cost of producing “acceptable” output from a system with no reserve capacity is one that no assessment, no checklist, and no institution has ever known how to count.

When Bible Study Became Too Complicated

·1139 words·6 mins
How I separated college Bible coursework from daily time with God, simplified my routine for low-energy days, and learned that prayer doesn’t have to be spoken out loud.

Learning Enough to Change Direction

·780 words·4 mins
A personal update on why I am moving away from the backend developer path, what Boot.dev did teach me, and what I want to build next with accessibility and sustainability in mind.

Emotions Take Energy

·490 words·3 mins
A personal reflection on why emotional expression can be physically expensive when you are chronically ill, and why quiet does not mean okay.

Grieving the Version of Me Everyone Thought I Was

·2282 words·11 mins
I’m grieving the realization that the independent future people imagined for me wasn’t based on my actual support needs. It was based on what they could see, what they wanted to believe, and what systems are willing to recognize.

2025


The Case for Self-Paced Education

·2291 words·11 mins
An in-depth essay exploring the challenges faced by multiply disabled learners in traditional education settings, and how self-paced education provides a more accessible and flexible alternative.

2024