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Recent Posts

Grieving the Version of Me Everyone Thought I Was

·11 mins
I’m grieving the realization that the independent future people imagined for me wasn’t based on my actual support needs. It was based on what they could see, what they wanted to believe, and what systems are willing to recognize.

The Crisis Got Me Here, but the Care Need Was Already Real

·6 mins
I entered nursing home care because I needed to get out of an unsafe situation quickly. But the crisis also forced me to face a bigger truth: I may need full-time long-term care, even if a nursing home isn’t the right setting forever.

Highly Verbal Does Not Mean Words Are Easy

·9 mins
Being seen as highly verbal and good at writing made people assume language was easy for me. It wasn’t. This piece is about the hidden labor behind producing words, the harm that assumption caused, and why AI can be language access rather than thought replacement.

Intent-First Computing

·9 mins
Text-first and keyboard-first interfaces aren’t outdated for many multiply disabled users. They’re access. This post argues for terminal-like transparency, desktop-like discoverability, and AI that can turn messy intent into action.

The Context Window Tax: Why Autonomous Agents Break Low-Income Budgets

·4 mins
Autonomous agents promise to be powerful assistive tools for disabled people, but their usage-based token models can quickly become financially unsustainable for those on fixed incomes. This article explores the “context window tax” that arises from the architecture of these systems and discusses the trade-offs of shifting to flat-rate consumer subscriptions as a more predictable alternative.

AI as a Second Brain

·7 mins
A personal look at how AI tools serve as a cognitive prosthetic for a multiply disabled user who relies on a custom stack of Pieces, Supermemory, Hermes Agent, and GitHub Copilot to function at baseline.

No Home Base

·5 mins
When you’re multiply disabled, conservative Christian, and an AI enthusiast, every community rejects part of your identity. No single space accepts the whole stack, so I’m building the infrastructure myself.