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Recent Posts

The Standing Order

·596 words·3 mins
Without a written standing order, every meal becomes a negotiation, and I am the one who loses every time.

Fasting When You Can't Fast

·520 words·3 mins
Fasting is a tool, not a law. The point is dependence, not deprivation. What that means for a body that can’t skip food, and why the discipline was never about the food.

What Good Days Look Like

·1038 words·5 mins
Most writing about disabled life focuses on what’s hard. This is what two days where things actually worked looked like for me.

AI Unlocked My Voice. Watermarking Could Take It Away.

·1135 words·6 mins
AI isn’t a writing assistant for me. It’s infrastructure. It’s the difference between thoughts trapped in my head and thoughts that become articles, code, advocacy, and community. And watermarking that can’t tell the difference between replacement and enablement threatens all of it.

Valedictorian, Interrupted

·1277 words·6 mins
I was valedictorian at the Texas School for the Blind with the highest test scores in my grade and four scholarships. Two weeks before graduation, I had to go home. They stripped everything. I got my diploma in the mail.

My Brain Is Broken

·1704 words·8 mins
The gap between what I know I’m capable of and what my brain will let me do. About executive dysfunction, initiation, and the feeling that your own mind is working against you.

Inaccessible to the People They're Trying to Reach

·1140 words·6 mins
Christian ministries for the chronically ill keep building events and platforms that exclude the very people they exist to serve. Live-only conferences, video-based content, paywalled recordings, and inaccessible websites aren’t just oversights. They’re choices.

Surfing the Waves of Fatigue

·287 words·2 mins
Fatigue from chronic illness doesn’t respond to rest. I picture it as a wave coming toward me. Caffeine, music, a splash of water on my face are my surfboard. Sometimes they hold. Sometimes the wave flings me off anyway.

The Pipe and the Voice

·1065 words·5 mins
I spent thirty years believing I hated writing. The problem was never writing. It was the barrier between my thoughts and the finished words, and the mom who saw that before I did.

Why a School Comes First

·873 words·5 mins
The ultimate goal is an organization for multiply disabled people. But most of us were taught we can’t contribute before we ever got the chance to try. The school rebuilds what the systems took.