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    <title>Personal on Lanie: Faith, Tech, and Advocacy</title>
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      <title>Highly Verbal Does Not Mean Words Are Easy</title>
      <link>https://lanie.work/advocacy/highly-verbal-does-not-mean-words-are-easy/</link>
      <pubDate>Thu, 18 Jun 2026 00:00:00 +0000</pubDate>
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      <description>&lt;p&gt;People have spent a lot of my life assuming words are easy for me.&lt;/p&gt;&#xA;&lt;p&gt;I was the kid who read early, read constantly, and used words in ways adults noticed. I was trying to talk before I was&#xA;six months old. My first word was really a first sentence: &amp;ldquo;Hi there mama.&amp;rdquo; I read everything I could get my hands on,&#xA;including a medical dictionary when I was six.&lt;/p&gt;&#xA;&lt;p&gt;From the outside, that looked like language strength. Maybe it was. I also suspect I may have been hyperlexic as a small&#xA;child, though I can&amp;rsquo;t prove that now. What I can say is that early reading made adults notice my language before they&#xA;noticed my friction with language. Reading words, recognizing patterns, and collecting vocabulary are not the same as&#xA;being able to explain yourself easily, answer quickly, or turn internal experience into speech on demand.&lt;/p&gt;</description>
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      <title>Blind, Multiply Disabled, and Pushed Beyond Capacity: A Personal Narrative</title>
      <link>https://lanie.work/advocacy/blind-multiply-disabled/</link>
      <pubDate>Sun, 04 Jan 2026 00:00:00 +0000</pubDate>
      <guid>https://lanie.work/advocacy/blind-multiply-disabled/</guid>
      <description>&lt;blockquote&gt;&#xA;&lt;p&gt;&lt;strong&gt;Content Note:&lt;/strong&gt; This narrative discusses medical trauma and institutional harm.&lt;/p&gt;&#xA;&lt;/blockquote&gt;&#xA;&lt;h2 id=&#34;preface&#34; class=&#34;relative group&#34;&gt;Preface &lt;span class=&#34;absolute top-0 w-6 transition-opacity opacity-0 -start-6 not-prose group-hover:opacity-100&#34;&gt;&lt;a class=&#34;group-hover:text-primary-300 dark:group-hover:text-neutral-700&#34; style=&#34;text-decoration-line: none !important;&#34; href=&#34;#preface&#34; aria-label=&#34;Anchor&#34;&gt;#&lt;/a&gt;&lt;/span&gt;&lt;/h2&gt;&lt;p&gt;This is a personal narrative about my experience as a blind, multiply disabled student in a residential school setting.&#xA;It reflects my lived experience and my understanding as an adult, informed by later medical and psychological&#xA;evaluations.&lt;/p&gt;&#xA;&lt;p&gt;This account isn&amp;rsquo;t intended as an attack on individual staff members. It&amp;rsquo;s an account of systemic failure, medical&#xA;misattribution, and institutional decision-making, and of the long-term impact those failures have had on my health,&#xA;functioning, and sense of safety.&lt;/p&gt;</description>
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